Our next meeting will be on February 27th from 1:30pm-3pm in our cluster space, EV 11.655 at Concordia University’s downtown campus.
This meeting is going to focus on Bioethics and Parenting.
Our speakers will include:
Cynthia Henriksen, a current Masters students in Bioethics at the Université de Montréal. The convergence of her interests in Disability Studies and qualitative research has led her to examine the Trisomy 21 Prenatal Screening Program of Québec. The focus of her field work is on the experience of women and parents who have participated in the program, and especially those who said ‘yes‘ to the pregnancy once a diagnosis of trisomy 21 has been confirmed.
Jacquelline Wallace is a PhD graduate from Concordia’s Communication Studies program, Jacquie’s perspective in this conversation is informed by her PhD training in critical cultural studies and intersectionality relative to disability politics and children with difference (or so-called intellectual disabilities); advocacy related to the Quebec health care system; and, most significantly, first-hand, auto-ethnographic experience as a parent with a post-natal diagnosis and part of the wider Down syndrome community.
Some questions to consider in this meeting:
What are the ethical stakes in implementing prenatal screening programs?
How are the rights and concerns of parents in these screening programs (under) represented in these governmental implementations?
How do medical models of disability affect this process?
How has this influenced the public health care system in Québec?
How can parents find spaces of agency and empowerment in these processes?